Independent Family Navigation and Clinical Trial Prescreening Consultant

Susan Metheny

DMD Pathways · Founder & CEO

Active within past month

Job description

DMD Pathways is seeking an independent registered nurse consultant to provide family navigation and trial-specific preliminary prescreening services to families affected by Duchenne muscular dystrophy.

DMD Pathways leadership will review all incoming inquiries and determine which families should be referred to the consultant. The consultant will not monitor general inbound inquiries, manage a public-facing inbox, maintain scheduled coverage periods, or provide continuous on-call availability. Instead, DMD Pathways will offer individual assignments to the consultant as family needs arise. Assignments may involve general family navigation, treatment-navigation support, or preliminary prescreening for a specific clinical trial.

The consultant may accept or decline individual assignments based on availability. Each family interaction will be scheduled according to the family’s needs and the consultant’s availability. No minimum number of cases or hours is guaranteed.

Primary Areas of Responsibility
Family Navigation
For assigned family-navigation cases, the consultant may:
- Review intake information and the reason for referral.
- Contact the family to confirm or arrange a mutually agreeable appointment time.
- Conduct scheduled navigation conversations by telephone or video.
- Listen to the family’s questions, priorities, concerns, and practical barriers.
- Provide general education and explain relevant information in clear, family-friendly language.
- Connect families with DMD Pathways resources, healthcare specialties, support organizations, financial resources, educational information, treatment-navigation services, and other appropriate services.
- Help families identify questions to discuss with their treating healthcare professionals.
- Support families in understanding the next steps within a healthcare, research, or support process.
- Provide warm handoffs to appropriate organizations, providers, research teams, or DMD Pathways services.
- Document resources provided, referrals made, follow-up needs, and outcomes.
- Complete agreed follow-up with the family.
- Escalate clinical, safeguarding, privacy, safety, or out-of-scope concerns according to DMD Pathways procedures.

More information

Minimum education level

N/A

Experience level

Mid-level (3-4 years)

Job skills

Communication

Organization

Documentation

Listening

Compassion

Company overview

DMD Pathways, Inc

Healthcare Navigation and Technology·11-50 employees

Mission Statement DMD Pathways exists to transform the experience of living with Duchenne by empowering families with trusted guidance and building trusted connections between patients, research sites, sponsors, and the clinical research community. We believe better-informed families and better-supported research lead to new therapies and better care, and we will never compromise the trust families place in us in pursuit of commercial success. Purpose DMD Pathways exists to help families confidently navigate Duchenne and clinical research. We partner with sponsors, CROs, and research sites to improve recruitment, engagement, and study execution, but we will never compromise the trust families place in us in pursuit of commercial success. Promise When you come to DMD Pathways, you become more than a visitor—you become part of a community that understands the weight of this journey. We promise to meet you with honesty, compassion, and respect. We will provide clear, trustworthy information, support you in making informed decisions, and never pressure you toward a treatment, clinical trial, or choice that is not right for your family. We will always be transparent about who we are, how we work, and why we ask for information. Your trust is something to be earned, never assumed. We believe that families deserve a voice in the future of Duchenne research. We will work alongside sponsors, research sites, and the clinical research community to improve the experience of participating in research—not by asking families to carry more of the burden, but by helping the entire system serve them better. If we are ever forced to choose between commercial opportunity and the trust families place in us, we will choose families. Every time.